Announcement- AAF Closure due to Hurricane Ian

Hurricane Ian devastated Fort Myers, Florida, where our main office is located. We are eager to begin our recovery efforts with the intention of reopening in December of 2022.

Unfortunately, all of our programs, including Pumps for Purpose, Cortisol Care Package and Chronically Creative Club are on hold until further notice. 

If you’d like to support us as we work to reopen, here are a few ways listed below!

  1. Take our survey!

We are asking all adrenal patients to take our short, confidential survey to help us collect data that shows the reality of life with cortisol deficiency. This data will allow us to create advancements in adrenal disease care and help educate medical professionals on the importance of proper cortisol care.

The more adrenal patients we survey, the more accurate the data will be so please share with your adrenal insufficient friends and advocacy groups.

  • Shop using Amazon Smile!

Purchase on AmazonSmile and select us as your charity https://smile.amazon.com/ch/83-3629121

  • Purchase Adrenal Awareness Merch!

AAF’s online store offers fun awareness items such as shirts, hoodies, bags, coffee mugs, thermos tumblers and more! 100% of proceeds goes to adrenal alternative’s patient programs.

https://adrenalalternatives.myshopify.com/

  • Purchase and review our books!

Adrenal Insufficiency 101 – A Patient’s Guide to Managing Adrenal Insufficiency

Cortisol Pumping Guide – A Patient’s Guide to the Cortisol Pumping Method

  • Donate!

Text the word GIVE to 833-807-5813 Or donate at www.paypal.com/paypalme/adrenalalternatives

  • Share, like and comment on our content on social media!

We exist to provide advocacy and access for all cortisol care, so the more people that know about us, the more people we can help.

AAF’s Social Media Links-

The Adrenal Alternatives Foundation is dedicated to advocacy and access for all cortisol care. AAF is registered with the IRS as a 501(c)3 nonprofit organization. All donations are tax deductible.

Hurricane Ian Updates

Hurricane Ian updates from Adrenal Alternatives Foundation.

Message from AAF Founder, Winslow Dixon.

Due to the devastation of hurricane Ian, we are closed until further notice.

Currently our pumps for purpose and care package programs are suspended, however our adrenal store is still in operation.

For more information, please visit our website adrenalalternatives.com or send an e-mail to adrenalalternatives@gmail.com

To donate:

Text the word GIVE to 833-807-5813 Or donate at paypal.com/paypalme/adrenalalternatives

You can also support us by:

Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency

Cortisol Pumping Guidebook

For more updates, sign up for our email list.

Adrenal Alternatives is a nonprofit, patient advocacy organization dedicated to advocacy & access for all cortisol care.

Addy invites you to Chronically Creative Club!

We are proud to announce Adrenal Alternatives Foundation has partnered with the organization Advocates for Disability Inclusion in Literature to expand our Chronically Creative Club program.

If you are a crafter, writer, musician, dancer, artist, singer and theatre performer with a chronic illness or disability we want to invite you to join us on zoom for Chronically Creative Club.

This is not a support group; it is a club to showcase creative abilities and our true selves outside of our medical conditions. This Club is a safe space for people who battle with health conditions to express who they are without stigma.

Meetings are on the 3rd Thursday of each month at 6:30pm Eastern Standard Time.

Meeting dates for 2022 are September 15, October 13, November 17, December 15.

Meetings will be broadcast LIVE on zoom, please pre-register at the link below to receive the zoom meeting details.

https://forms.gle/VYn9qSn1oNyA6FeH6

More details can also be found on our website:

This content has been brought to you by the Adrenal Alternatives Foundation, a nonprofit, patient advocacy organization dedicated to advocacy & access for all cortisol care.

If you’d like to support us, here are a few ways to get involved:

Sign up for our email list. https://gmail.us20.list-manage.com/subscribe?u=5e6950f5fe9efe797e1163544&id=8d9710ae9e&fbclid=IwAR2BnCzWvMdQ1G4_htKgHXV7ATrPBbqBgKg_MV8q2RBU_c4JOdmrp5cQmuo

Listen to our Podcast on Spotify, iTunes & Anchor https://anchor.fm/adrenalalternatives

Attend an online or in person event. https://www.facebook.com/hopeforadrenaldisease/events

Purchase Adrenal Awareness Merch from our online store. https://adrenalalternatives.myshopify.com/

Shop using AmazonSmile. When you shop on Amazon, use AmazonSmile and choose Adrenal Alternatives as your charity of choice to donate at no cost to you! https://smile.amazon.com/ch/83-3629121

Like, share and comment on our social media.

Twitter: https://twitter.com/AdrenalAdvocate

Instagram: https://www.instagram.com/adrenalalternativesfoundation

Podcast: https://anchor.fm/adrenalalternatives

FaceBook: https://www.facebook.com/hopeforadrenaldisease

Youtube: https://www.youtube.com/channel/UCxeZtgNgZpksinD2tV8_IlQ

Purchase, Share & Review our Books on Amazon:

Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency

Cortisol Pumping Guidebook

Donate:

Text the word GIVE to 833-807-5813 Or donate at http://www.paypal.com/paypalme/adrenalalternatives

You can also donate your old insulin pumps and supplies. (Broken pumps can still be used for research)

Adrenal Alternatives Foundation, Ein: 83-3629121. 501c3 Non-Profit Patient advocacy organization. All donations tax deductible.

AAF is partnering with Advocates for Disability Inclusion in Literature!

We are proud to announce Adrenal Alternatives Foundation has partnered with the organization Advocates for Disability Inclusion in Literature to expand our Chronically Creative Club program!

Chronically Creative Club is a safe space for people who battle with health conditions to express who they are without the stigma of ableism. This is not a support group; it is a club to showcase creative abilities and our true selves outside of our medical conditions. All forms of creativity such as: crafters, writers, musicians, dancers, artists and theatre performers with a chronic illness or disability are welcome. This program is an extension of our All Abilities Included campaign.


Time: Third Thursday of each month.  6:30pm EST

(2022 Meeting Dates: September 15, October 13, November 17, December 15)

Place: Meetings will be broadcast LIVE on zoom, please pre-register at the link below to receive the zoom meeting details.

https://forms.gle/VYn9qSn1oNyA6FeH6


When you become a member of the Chronically Creative Club, you will join a network of incredibly inspiring artists, musicians, writers, dancers and theatre performers who are overcoming disabilities every single day.

This club was created to remind us that despite the difficulties we may face, we are still valid and can create beauty in the world. We are all born with different gifts and talents, and it is important we share them!  

In an effort to make our club accessible to everyone, we do not charge a membership fee, however we do accept donations to cover costs such as payment for guest speakers, sponsored craft supplies for those who are financially unable to participate in the in-person meeting activity and rental fees for our in-person classes we provide through this program.

This club was created to support disabled creators in every way possible, so all  donations are appreciated and can be done safely and securely by texting the word GIVE to 833-807-5813  Or you can donate at www.paypal.com/paypalme/adrenalalternatives.  

We welcome all chronically creative folks to share your incredible talents with us! If you would like to be a featured guest speaker, please contact us at adrenalalternatives@gmail.com

“You can’t use up creativity. The more you use, the more you have.”

Maya Angelou

We look forward to seeing you on zoom!

This information has been brought to you by the Adrenal Alternatives Foundation and is not to be used to provide medical care. Adrenal Alternatives is a nonprofit, patient advocacy organization dedicated to advocacy & access for all cortisol care.

If you’d like to support us, here are a few ways to get involved:

  1. Sign up for our email list. https://gmail.us20.list-manage.com/subscribe?u=5e6950f5fe9efe797e1163544&id=8d9710ae9e&fbclid=IwAR2BnCzWvMdQ1G4_htKgHXV7ATrPBbqBgKg_MV8q2RBU_c4JOdmrp5cQmuo
  2. Listen to our Podcast on Spotify, iTunes & Anchor https://anchor.fm/adrenalalternatives
  3. Attend an online or in person event. https://www.facebook.com/hopeforadrenaldisease/events
  4. Purchase Adrenal Awareness Merch from our online store. https://adrenalalternatives.myshopify.com/
  5. Shop using AmazonSmile. When you shop on Amazon, use AmazonSmile and choose Adrenal Alternatives as your charity of choice to donate at no cost to you! https://smile.amazon.com/ch/83-3629121
  6. Like, share and comment on our social media.

Twitter: https://twitter.com/AdrenalAdvocate
Instagram: https://www.instagram.com/adrenalalternativesfoundation
Podcast: https://anchor.fm/adrenalalternatives
FaceBook: https://www.facebook.com/hopeforadrenaldisease
Youtube: https://www.youtube.com/channel/UCxeZtgNgZpksinD2tV8_IlQ

  1. Purchase, Share & Review our Books on Amazon:
    Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency
    https://www.amazon.com/Adrenal-Insufficiency-101-Patients-Managing/dp/1734907304
    Cortisol Pumping Guidebook
    https://www.amazon.com/dp/B08XWQLMBS?ref_=k4w_oembed_UAxN1wqheoeDeg&tag=kpembed-20&linkCode=kpd
  2. Donate:
    Text the word GIVE to 833-807-5813 Or donate at http://www.paypal.com/paypalme/adrenalalternatives

You can also donate your old insulin pumps and supplies. (Broken pumps can still be used for research)

Adrenal Alternatives Foundation, Ein: 83-3629121. 501c3 Non-Profit Patient advocacy organization. All donations tax deductible.

How to make an Adrenal Crisis Care kit

In the event of an adrenal crisis, a cortisol replacement injection must be administered. Do not ever hesitate to inject an adrenal insufficient patient with cortisol replacement medication if they are experiencing an adrenal crisis.

Items needed in an Adrenal Crisis Care Kit:

  • • Cortisol Replacement Medication Vial
  • • Alcohol Prep Wipes
  • • Intramuscular Syringes (It is recommended to have at least 2 just in case)
  • Instructions on how to administer cortisol replacement via injection. AAF’s QR code can be scanned to immediately access dosing instructions. (You can download this QR code at the link https://drive.google.com/file/d/1DfkwOgEMEqcyTrvJU_t5IFF0eJeOKA33/view

How to Administer Solu-Cortef Acto-Vial Emergency Cortisol Injection

  1. Remove the two-chamber vial containing Solu-Cortef Act-O-Vial from the packaging.
    a. Press the colored cap down to mix solvent with the powder solution of hydrocortisone.
    b. Mix the contents until the powder is dissolved. The powder solution of hydrocortisone is completely dissolved once the solution is clear
  2. Remove the protective disc from the center of the plastic cap of the vial.
  3. Wipe top of vial with alcohol swab to sterilize it before inserting syringe into bottle.
  4. Insert the syringe into the vial. Turn the vial upside down and draw the solution into the syringe.
  5. Hold the syringe like a dart and push the needle for 2/3 of its length into the chosen injection site at a right angle to the skin.
  6. Give the injection into intramuscular tissue such as the buttock or in the upper thigh muscle.

What if my doctor refuses to prescribe an emergency cortisol injection?


Prescribing a cortisol replacement emergency injection is a documented, standard treatment protocol for patients with any form of cortisol deficiency. If your doctor refuses to prescribe an emergency injection, you can provide your physician with the informational links posted below regarding the importance of providing an emergency cortisol replacement injection to treat an acute adrenal crisis.


If they continue to refuse to provide you with this life saving prescription, they can be reported to the medical board. Ignorance on care protocols for rare disease treatments is common, which is why doctors must be willing to educate themselves with documented research. However, negligence and refusal to provide standard care is unacceptable and should be reported to the medical board in order to prevent harm from occurring.

Having an emergency adrenal crisis care kit is vital to the management of adrenal insufficiency. Please do not continue receiving care under a physician who is unwilling to properly manage cortisol deficiency.

Supporting links:
https://pubmed.ncbi.nlm.nih.gov/29763143/#:~:text=Adrenal%20crisis%2C%20also%20termed%20acute,soon%20upon%20arrival%20in%20hospital

https://www.pituitary.org.uk/information/publications/adrenal-insufficiency/letter-to-gp-digital-template/


More information on managing adrenal disease can be found in our book, Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency
Available at the link:
https://www.amazon.com/Adrenal-Insufficiency-101-Patients-Managing/dp/1734907304

This information has been brought to you by the Adrenal Alternatives Foundation and is not to be used to provide medical care. Adrenal Alternatives is a nonprofit, patient advocacy organization dedicated to advocacy & access for all cortisol care.

If you’d like to support us, here are a few ways to get involved:

  1. Sign up for our email list. https://gmail.us20.list-manage.com/subscribe?u=5e6950f5fe9efe797e1163544&id=8d9710ae9e&fbclid=IwAR2BnCzWvMdQ1G4_htKgHXV7ATrPBbqBgKg_MV8q2RBU_c4JOdmrp5cQmuo
  2. Listen to our Podcast on Spotify, iTunes & Anchor https://anchor.fm/adrenalalternatives
  3. Attend an online or in person event. https://www.facebook.com/hopeforadrenaldisease/events
  4. Purchase Adrenal Awareness Merch from our online store. https://adrenalalternatives.myshopify.com/
  5. Shop using AmazonSmile. When you shop on Amazon, use AmazonSmile and choose Adrenal Alternatives as your charity of choice to donate at no cost to you! https://smile.amazon.com/ch/83-3629121
  6. Like, share and comment on our social media.

Twitter: https://twitter.com/AdrenalAdvocate
Instagram: https://www.instagram.com/adrenalalternativesfoundation
Podcast: https://anchor.fm/adrenalalternatives
FaceBook: https://www.facebook.com/hopeforadrenaldisease
Youtube: https://www.youtube.com/channel/UCxeZtgNgZpksinD2tV8_IlQ

  1. Purchase, Share & Review our Books on Amazon:
    Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency
    https://www.amazon.com/Adrenal-Insufficiency-101-Patients-Managing/dp/1734907304
    Cortisol Pumping Guidebook
    https://www.amazon.com/dp/B08XWQLMBS?ref_=k4w_oembed_UAxN1wqheoeDeg&tag=kpembed-20&linkCode=kpd
  2. Donate:
    Text the word GIVE to 833-807-5813 Or donate at http://www.paypal.com/paypalme/adrenalalternatives

You can also donate your old insulin pumps and supplies. (Broken pumps can still be used for research)

Adrenal Alternatives Foundation, Ein: 83-3629121. 501c3 Non-Profit Patient advocacy organization. All donations tax deductible.