Resources

Cortisol Pump Studies

Comparison of Cortisol Pump With Standard Treatment for Congenital Adrenal Hyperplasia

Cortisol Pumps Help Reduce Adrenal Crisis

Using the Cortisol Pump to Deliver Cortisol in Addison’s disease

Cortisol Pumps May Be Viable Option to Reduce Adrenal Crisis in Severe Adrenal Insufficiency

New adventures of an old device: Clinic delivers cortisol via the insulin pump

Pulsed glucocorticoid therapy successfully replaced physiological cortisol

Cortisol Pumps May Be Viable Option to Reduce Adrenal Crisis in Severe Adrenal Insufficiency

 Ultradian Subcutaneous Hydrocortisone Infusion in Addison Disease and Congenital Adrenal Hyperplasia

Continuous Subcutaneous Hydrocortisone Infusion versus Oral Hydrocortisone Replacement for Treatment of Addison’s Disease: A Randomized Clinical Trial

Long‐term use of continuous subcutaneous hydrocortisone infusion therapy in patients with congenital adrenal hyperplasia

Comparison of Cortisol Pump With Standard Treatment for Congenital Adrenal Hyperplasia

Management of Altered Hydrocortisone Pharmacokinetics in a Boy with Congenital Adrenal Hyperplasia Using a Continuous Subcutaneous Hydrocortisone Infusion

Circadian hormone profiles and insulin sensitivity in patients with Addison’s disease: a comparison of continuous subcutaneous hydrocortisone infusion with conventional glucocorticoid replacement therapy

Research Study for Children With Salt Wasting Congenital Adrenal Hyperplasia

Management of adrenocortical insufficiency with continuous subcutaneous hydrocortisone infusion: long-term experience in three patients

Fourteen years’ experience of hydrocortisone pump therapy for cortisol replacement in adrenal insufficiency

Replication of cortisol circadian rhythm: New advances in hydrocortisone replacement therapy

Circadian Rhythm Dosing

Books on Adrenal Disease

Adrenal Disorders: Physiology, Pathophysiology and Treatment

Adrenal Glands: Diagnostic Aspects and Surgical Therapy

Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency

Adriana’s Adrenal Insufficiency (Mediwonderland) Children’s book explaining Adrenal Disease

Congenital Adrenal Hyperplasia: A Comprehensive Guide by Peter C Hindmarsh & Kathy Geertsma

CONGENITAL ADRENAL HYPERPLASIA: A Parents’ Guide Illustrated Edition by C. Y. Hsu & Scott A. Rivkees

Endocrine Emergencies

Handbook of Diagnostic Endocrinology

Living With Addison’s Disease: A Guide For People With Addison’s, Supporters and Professional

Living with All Forms of Adrenal Insufficiency: Not Fighting Your Body

Medical and Surgical Management of Adrenal Diseases

My life with Addison’s Disease: an Addisonian’s experience

The Adrenal Insufficiency Handbook: How to Live Stress-Free After a Diagnosis: Summary of the Adrenal Glands’ Role in Stress, Addison’s Disease, Difference from Adrenal Fatigue, Diet and Treatment

The Hypothalamic-Pituitary-Adrenal Axis in Health and Disease

Affiliate Organization Resources

 A Global Organization: Pain Has No Borders, So Neither Does CIAAG! Chronic Illness Advocacy & Awareness Group, Inc.

Community for the chronically ill- The Unchargeables

CR3 Diabetes- Infusion Pump and Supply Charity

Mental Health Resources for those with Chronic Health Conditions- Empowering People with Invisible Chronic Illness (EPIC) Foundation

Migraine Headache Management and Support- Migraine Mantras

Non-profit corporation advocating for rare disease globally- Global Genes

Raise awareness and provide support for rare disease patients- Couch Pennies Foundation

Rare Disease Advocacy Legislative Organization – Danny’s Dose

Truth Warriors CRPS Pain Advocacy Organization- Complex Truths

National Adrenal Disease Foundation- NADF

Upcoming Biotech: Cortisol Emergency Injection – SOLUtion Medical Simplifying Adrenal Crisis Health Management