Interview with Adrenal Alternatives Foundation Guest Affiliate- Lisa Baker
Q- Please introduce yourself.
A- Lisa C. Baker, CNC, RNHP, CWC
A- Lisa C. Baker, CNC, RNHP, CWC
Mermaids and adrenal disease……what do these two things have in common?
We all know mermaids are the mythological creatures found in fairy tales and storybooks we read as children. Many of us spent countless hours in pools and the ocean, pretending to be these fantastic, beautiful creatures…..only to grow up to find the harsh reality that mermaids don’t exist….but diseases like adrenal insufficiency do.
Winslow E. Dixon was that little girl who loved mermaids. She loved the water and idolized all things ocean. As a child, she blissfully played in the ocean waves, pretending she was a creature of the sea.
But that little girl grew up to realize that her fairytale of living in the sea wouldn’t come true. Life dealt her a stiff hand of medullary sponge kidney disease and endometriosis, which resulted in chronic pain from a young age. This chronic pain was so severe it taxed her life and resulted in total adrenal failure- Addison’s disease. At 23 years old, this little girl grew up to find the nightmare of an adrenal crisis, never to be the same again.
Her health failed and her dreams crashed along with it.
But that little girl, all grown up now, was determined to get her life back.
She searched far and wide for options to treat her disease and discovered the promising hope of the cortisol pump.
She quickly discovered this treatment option was hard to come by.
Nevertheless, she persisted.
She visited multiple endocrinologists nationwide and was rejected by multiple doctors. No one seemed to want to take a chance on this treatment.
After two years of fighting, she decided to do it herself. She enlisted the help of a pharmacist and consulted Professor Hindmarsh and decided to take control of her health. She began the cortisol pump in March of 2018.
Winslow went from being completely bedridden and unable to function to being able to enjoy life again. She was able to fulfill a life long dream of swimming like a mermaid, thanks to the strength she found from using the cortisol pump.
Though the pump has not been a cure, it has helped her find better days and more quality of life.
After seeing how little resources there were on cortisol pumping, Winslow then decided to start the Adrenal Alternatives Foundation to help adrenal patients find every resource to manage this devastating disease.
When you’re adrenals fail, you are forced to find alternatives…..which are typically oral steroid pills. The treatment protocols for adrenal insufficiency have not changed since 1920. This is unacceptable. Research and treatment protocols are outdated.
This foundation was created to be the voice for those struggling with unmanaged adrenal disease.
Life may not be a fairytale, but it doesn’t have to be a nightmare.
Winslow’s story shows us that even though things may look bleak, there is always hope.
Adrenal Alternatives Foundation is here to educate the world on the TRUTH of adrenal disease and to empower patients to find the best quality of life possible.
Change is coming for adrenal disease ❤
I am sick.
I have an invisible illness.
I have chronic pain.
I have guilt for it.
Everything that I have to go through on a daily basis, isn’t fun.
Most days I am in so much pain, I don’t even know if I will be able to walk at all.
Most days I am tired, but I still have to function.
It messes with my thought process and I can’t even recognize things or voice what I need, because my brain just can’t process the words I need. Yet, I feel guilty over having to cancel plans, or opt out of things my friends are doing, and even having to have my kids stay inside and play video games (which they do love) because I can’t do anything.
My diet change (whole food plant based) has helped quite a bit. It helps manage some of the fibro pain, but more symptoms have presented and I just don’t know what to do.
I took my oldest son to his orientation and I can’t tell you how painful that was. I was so exhausted, in so much pain, but I had to push through it. It took me a couple days to feel some what normal again, but I felt so guilty for being in pain and for being tired. I didn’t want him to be embarrassed because his mom looked like shit. I know in my heart that he doesn’t care. He loves me and he enjoyed me being there, but for some reason…. I feel guilty.
I can’t be the wife or mother my kids need… Let me rephrase that… I can’t be the wife or mother I think my family deserves.
I am working on this, but it is hard. This disease pulls me into the worst depression and destroys the person I am working hard to be. It would be easier If I knew there was an end to this pain. It would be easier if I knew what days I would struggle and what days would be good. I have better odd betting in Vegas than I do on my disease.
Guilt eats at me everyday but I need to stop listening to my inner voice and listen to my family and friends. They love me, they don’t care if I miss events or bail on them, they constantly reassure me that they are always here for anything I need. Those words should drown out the negative words in my inner thoughts, but I am in my head way to much.
Don’t let your inner voice be bigger than the ones who are encouraging and loving.
Lean on your loved ones, let them know how you feel, so their words will overshadow yours.
No more guilt.
-Adrenal Alternatives Contributor, Chronic Mom