Adrenal Alternatives Foundation is a 5o1c3 nonprofit patient advocacy organization dedicated to providing advocacy and access for all cortisol care options. Below is a list of the programs and services we offer.
CORTISOL CARE ADVOCACY
We exist to guide cortisol deficiency patients to all possible cortisol care options and provide education and resources on how to access and manage them. Our team is also dedicated to helping patients obtain insurance approval for their cortisol care medications and alternative delivery methods.
Our Pumps for Purpose collaborative program with the organization CR3 helps us provide infusion pumps and supplies to adrenal patients. with or without insurance coverage.
ADRENAL AWARENESS INITIATIVE
Our Adrenal Awareness Initiative is a program we have created with downloadable materials such as: printable pamphlets, power point presentations, educational videos and advocacy images designed by our clinical team to educate patients, caregivers, family members, physicians, paramedics and all other medical professionals on how to recognize and manage adrenal insufficiency. These materials are available on our website and we also mail awareness packets with the complete program enclosed.
We are actively working to change legislation that all qualified EMS personnel in the USA are authorized to administer the life-saving Solu-Cortef injection, which is not currently the case. Not all emergency medical personnel are allowed to administer life saving cortisol replacement medication and most ambulances do not have it on board. We are working to change this on a local, state and federal level. We have aligned with organizations such as Rare Disease Legislative Advocates, CIAAG- Chronic Illness Advocacy and Awareness Group , Danny’s Dose and Adrenal Insufficiency Protocols who actively work to legislate for patient rights.
We have created the EMS/Paramedic Acute Adrenal Crisis Care Guidelines and EMS/Paramedic Protocol Advocacy Instructions so every cortisol deficient patient can provide their local fire station with lifesaving information.
Our team also represents adrenal disease directly in congress through the Rare Disease Legislative Caucus. Our team proudly serves on the COVID19 response, Public Policy and Healthcare Access congressional committees.
We are currently conducting a survey on Quality of Life in cortisol deficient patients on steroid medications in preparation for a pilot study to explore the differences of various steroid replacement methods and medications to treat adrenal insufficiency. There has never before been a study that compares all forms of steroid administration for the treatment of cortisol deficiency, therefore this information will provide insight into the effectiveness of various management tools in adrenal disease care.
We are working on innovations that create more biotechnology to manage cortisol deficiency such as our Emergency Injection Instruction QR code that provides instant access to instructions on how to administer the life saving cortisol injection.
Unlike diabetics, who can check blood glucose instantly, there is currently no way to check cortisol blood levels outside of a lab setting. Cortisol deficiency patients must be constantly vigilant of their cortisol levels, which can drop in an instant. Research and technology advances are desperately needed to manage this difficult disease.
Through our affiliation with ZRT laboratories, we are able to offer at home saliva, urine and blood spot cortisol testing to evaluate the efficacy of a patient’s current cortisol replacement.
ALL ABILITIES INCLUDED CAMPAIGN
Our #allabilitiesincluded campaign as a nationwide effort to promote equality and provide support and resources to people with all disabilities.
Society has conditioned us to believe that disability is defined as someone in a wheelchair, but in reality, the majority of disabilities are invisible and the true definition of disability is: Any physical or mental issue that impacts a person’s quality of life.
We host an annual Disability Inclusion Celebration Event every year on rare disease day in beautiful Fort Myers, Florida on the Alliance for the Arts Campus!
We are also currently supporting the Disability Book Initiative to promote the accurate representation of disability in literature and to support writers with chronic conditions.
Adrenal Insufficiency 101: A Patient’s Guide to Managing Adrenal Insufficiency book contains factual information supported by credible medical sources, patient surveys and personal testimonies of real adrenal patients.
Cortisol Pump 101: A Patient’s Guide to Managing the Cortisol Pumping Method book includes medical studies, clinical research and documented patient empirical evidence on how to safely and effectively manage the cortisol deficiency via the infusion pump.
CORTISOL CARE CENTER
We are in the process of obtaining the funding to open a cortisol care center to provide the most up to date management tools to treat all forms of cortisol related diseases. There is currently no center in the United States which offers imperative testing such as cortisol day curves and comparative lab assays of saliva, blood and urine cortisol levels. Our center will service every form of cortisol related diseases and offer all forms of cortisol replacement.
Our foundation podcast discusses topics to help adrenal disease sufferers discover every possible resource to manage their health and features interviews with medical professionals, biotech innovators and leaders in patient advocacy.
For updates on the foundation, sign up for our email list at this link!
We appreciate all contributions which allow us to further our mission: Advocacy and Access for all cortisol care.
To donate to safely and securely text GIVE to 833-807-5823